PARTICIPATING REGISTRIES

GAUCHER REGISTRY

The Gaucher Registry is the largest observational study of patients with Gaucher disease in the world. Any person with a confirmed diagnosis of Gaucher disease is eligible to participate, regardless of disease type, treatment status or treatment choice. The data from patients from over 60 countries are being used to increase knowledge about Gaucher disease to improve outcomes for this rare disorder.
Registry Sponsor: Genzyme Corporation, a Sanofi Company

FABRY REGISTRY

The Fabry Registry is a global resource dedicated to improving the understanding of the variability and progression of Fabry disease.Any person with a confirmed diagnosis of Fabry disease is eligible to participate, regardless of disease type, treatment status or treatment choice. The Registry's mission is to increase the understanding of Fabry disease to improve outcomes for patients with this disorder.
Registry Sponsor: Genzyme Corporation, a Sanofi Company

POMPE REGISTRY

Over 190+ investigators and 1000+ patients have contributed 6,000 patient years of data since 2004. Any person with a confirmed diagnosis of Pompe disease is eligible to participate, regardless of disease type, treatment status or treatment choice. The Registry's mission is to increase the understanding of Pompe disease to improve outcomes for patients with this disorder.
Registry Sponsor: Genzyme Corporation, a Sanofi Company

MPS I REGISTRY

The MPS I Registry was initiated worldwide in April 2003 as an international observational registry program and data from over 1000 patients with has been collected from physicians in over 30 countries. Any person with a confirmed diagnosis of MPS I disease is eligible to participate, regardless of disease type, treatment status or treatment choice. The Registry's mission is to increase the understanding of MPS I disease to improve outcomes for patients with this disorder.
Registry Sponsor: Genzyme Corporation, a Sanofi Company

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